Koen is an adorable four-year-old boy who was born with a congenital genetic disorder (CTNNB1). He also experiences global developmental delays, meaning he is unable to stand independently still at age four, microcephaly, hypotonia and spasticity, trouble with feeding and swallowing (and is fed through a GTube), and sensory over-responsivity disorder.
Koen receives government-funded Occupational Therapy, Physical Therapy and Speech-Language Pathologist visits once a month. Even with these services, this is too little to take advantage of his neuroplasticity and make a difference.
MPFIC funded Koen’s first intensive program at NAPA Center in Los Angeles. His program took place over 3 weeks, 5 days a week. Each day he had a 4 hour session, consisting of 2 Neurosuit hours, 1 CME (Cuevas Medek Exercise) hour, and 1 Feeding Therapy hour.
“I am writing to express my deep appreciation to the Maryam Parman Foundation for funding my son Koen’s first intensive therapy session at NAPA Los Angeles.
Thank you to your donors for sponsoring the sessions and making this possible for Koen and our family! We feel blessed with this opportunity. The benefits are priceless!” – Karin, Koen’s Mother.
